Oh boy, it’s about time for an update!
In March Wm had his 18-month check-up. The doctor and I discussed if we could challenge milk. He talked to two gastroenterologists and a pediatric allergist, and they all agreed that it is best to wait to reintroduce milk until he is 3 years old. Sigh. That seems like forever from now. I was so anxious to try milk again and hopeful that Wm has out-grown FPIES. It would be so nice to not have to worry about what he can eat, and just have “normal” meals that I don’t have to tailor for him, and to no longer have to explain why he can’t have “regular table food.”
The GI doctors did say that we can s.l.o.w.l.y introduce soy, rice and oatmeal – the big ones that kids who react to milk will also react to. We are to do small quantities of one food at a time for a month each, and increase the quantities each week. We started with soy milk since I am trying to wean Wm (I want my body back!!) and he needs a new source of calcium since he isn’t nursing as much anymore. We are now on Day 5 of soy milk and he LOVES it. I started with “a splash” – I’m guessing it’s about a tablespoon. He gulped it down so fast and then wanted to know why there wasn’t more! I was so happy he loved it, it was hard not to fill up his cup.
I’ve given up on exact measurements for his portions of food. I stopped keeping a food journal months ago. I don’t even pre-make his safe foods and freeze them in ice cube trays anymore. It’s just so exhausting. We have been trialing new food every two weeks for over a year and Wm hasn’t had a reaction to anything new. (Be sure to check out the Our Food List tab for the updated safe foods.) FPIES is getting old, especially since it seems clear we don’t have to be on our guard with new food.
We went to visit Wm’s great-grandma this last weekend and ate out quite a bit. We were able to order food for Wm off the kids’ menu for the first time. Ever. It was a momentous occasion of normal. I cannot explain how much stress has been lifted from my life to not have to pack every meal just to spend the day a Grandma’s. To not have to carry a mini cooler into a restaurant. To not feel like a pack mule carrying what feels like 13 bags anywhere we go. To not have to guess how long we’ll be out running errands and bring two meals “just in case”. It was so nice to be almost normal.
On a lighter note, here is a four-generation photo from this weekend! Wm didn’t really want to sit still for a picture. 😉